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Advocating Dystonia Issues
The
National Spasmodic Torticollis Association is a member of
the Dystonia Advocacy Coalition. The goal of the Dystonia
Advocacy Coalition (DAC) is to speak with one voice for
issues affecting the Dystonia community. By developing and
maintaining Congressional relationships we hope to raise
awareness concerning the needs of people affected by
Dystonia and to encourage Dystonia Champions on the Hill.
The
Dystonia Advocacy Coalition responsibilities include
developing, implementing and managing a legislative and
policy agenda to meet the needs of the Dystonia community.
Dystonia advocates will be trained and guided in achieving
the goals of the DAC. Legislation relative to the Dystonia
community will be monitored and communicated to the
membership of the participating organizations for
appropriate action.
For more
information please visit the website of the Dystonia
Advocacy Coalition at
www.dystonia-advocacy.org. |